On the 29th May 2022 our very own Kimberley Dubbin is taking part in the Edinburgh Marathon Festival. Inspired by a young adult who was diagnosed late with Vascular Ehlers Danlos Syndrome (VEDS), Kimberleyis running to raise money and awareness of this life threatening connective tissues disorder.

If you would like to support Kimberley please visit her Just Giving page.

What is EDS?

Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue.

These include:

• an increased range of joint movement (joint hypermobility)
• stretchy skin
• fragile skin that breaks or bruises easily

EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling.

Some of the rare, severe types can be life threatening.